Autism and Intellectual Disability
Resources for supporting youth with autism and/or intellectual disability.
Screening and Assessment Tools
Modified Checklist for Autism in Toddlers-Revised (M-CHAT R/F): 23-item autism screening tool for children ages 16-30 months.
Autism Spectrum Quotient (AQ): A 50-item parent or self-report measure for ages 4+.
Parent Observation of Social Interactions (POSI): A 7-item parent report screening instrument for ages 16-36 months. The POSI is included on the 18-, 24-, and 30-month Survey of Well-being of Young Children (SWYC).
Therapy Tools and Patient Handouts
DC-AC (DC Autism Collaborative) Resources: Toolkit for community providers in Washington, D.C., to support early childhood families with resource navigation related to autism concerns. Available in English, Spanish, and Amharic.
Unstuck and On-Target Parent Resources: Free, parent-facing educational handouts and videos from the Unstuck and On Target executive dysfunction intervention developed at Children’s National for children with ADHD, autism, and/or learning disorders. Covers cognitive inflexibility, emotional dysregulation, and other executive functioning problems. The website also includes free online continuing education credits for elementary educators on the Unstuck curriculum.
Children’s National Visual Supports and Resources: Family-facing website from the Beyond the Spectrum program at Children’s National. Includes visual schedules and teaching stories for medical procedures including blood draws, EEG, and dental examinations.
Communicating Visually in Pediatrics: A Step-by-Step Tool for Supporting Patients and Caregivers: Nearly 400 easy-to-understand, full-color images depict common medical procedures, from bandaging to vaccine administration as well as important patient-provider communication, including describing symptoms or post-visit instructions. Each image is captioned in both English and Spanish for maximum in-office utility, and the pages are fully wipeable for simple disinfecting after each patient.
The Parent Playbook: A free online introductory course about autism spectrum disorders aimed at parents and caregivers. The course is provided as a collaboration between the Virginia Commonwealth University Autism Center for Excellence and the Virginia Autism Council.
Treatment and Pharmacology Guides
ASD Toolkit for Pediatric Primary Care Providers in DC: This toolkit focuses specifically on supporting children with Autism Spectrum Disorders and their families by providing primary care providers with the tools to help families navigate the developmental disabilities landscape in Washington, DC.
Virginia Mental Health Access Program Guide for Promoting Child and Adolescent Behavioral and Mental Health in Primary Care (VMAP Guidebook): The VMAP Guidebook is a compilation of evidence-based practices, up-to-date resources, and practical knowledge specifically geared toward pediatric and adolescent health care providers.
AAP Caring for Children With Autism Spectrum Disorder: A Practical Resource Toolkit for Clinicians, 3rd edition: American Academy of Pediatric toolkit. Primary care providers play an important role in helping children on the autism spectrum get the assistance and services they need. Use these fact sheets and family handouts to enhance your comfort with applying new diagnostic criteria, addressing common issues, and incorporating culturally appropriate care into your workflow.
AACAP Autism Resource Center: Clinician resources from the American Academy of Child and Adolescent Psychiatry.
Resources for Healthcare Providers: From the Special Olympics Center for Inclusive Health.
Health Care for Adults with Intellectual and Developmental Disabilities: Toolkit for PCPs from the Vanderbilt Kennedy Center.
Massachusetts CPAC Guidelines and Clinical Pearls: Guidelines and clinical pearls from the Massachusetts Child Psychiatry Access Program.
Questions to ask autism families before calling MAP: Questions for clinicians to consider while evaluating youth with neurodevelopmental disorders and difficult behaviors.
Florida Best Practice Psychotherapeutic Medication Guide for ASD and ID: Algorithms for the treatment of pediatric mental health issues in primary care settings, from The Florida Center for Behavioral Health Improvements and Solutions and the University of South Florida.
Treatable ID: An Interactive Tool for the Clinician: A systematic literature review identified 116 inborn errors of metabolism which are causally related to Intellectual Disability and amenable to therapy. These diseases are presented on this website as an interactive tool for the clinician and scientist, both expert and trainee.
Autism Resource for Warning Signs of Suicide: Considerations for the Autism Community: Clinical information from the American Association for Suicidology.
Webinars for Providers
Pediatric Health Network Behavioral Health Initiative Presentations: July 2022 Pediatric Health Network Behavioral Health Initiative webinar on autism spectrum disorders.
Neuropsychological and Autism Testing: Monthly webinar series for pediatricians from the ACCESS Mental Health Connecticut child mental health access program.
Parenting strategies and diagnosis of older children: Educational webinar series for primary care providers on pediatric and perinatal mental health from the MC3 mental health access program at the University of Michigan.
